Required Website Disclaimer: The information provided herein should not be construed as a health-care diagnosis, treatment regimen or any other prescribed health-care advice or instruction. The information is provided with the understanding that the publisher is not engaged in the practice of medicine or any other health-care profession and does not enter into a health-care practitioner/patient relationship with its readers. The publisher does not advise or recommend to its readers treatment or action with regard to matters relating to their health or well-being other than to express and share findings based from personal experience, research literature and suggesting that readers consult appropriate health-care professionals when incorporating a new wellness techniques including but not limited to diet modifications.

I am not advising any action be taken based solely on the content of this publication. Always consult with your doctor, specialist or naturopath health-care professional before starting anything new regarding your health. The information and personal experience and opinions provided herein are believed to be accurate and sound at the time of publication, based on the best judgment available to the authors. However, readers who rely on information in this publication to replace the advice of health-care professionals, or who fail to consult with health-care professionals, assume all risks of such conduct. The publisher is not responsible for errors or omissions.

The information and reference materials contained here are intended solely for the general information of the reader. It is not to be used for treatment purposes, but rather for discussion with the patient’s own physician. The information presented here is not intended to diagnose health problems or to take the place of professional medical care. The information contained herein is neither intended to dictate what constitutes reasonable, appropriate or best care for any given health issue, nor is it intended to be used as a substitute for the independent judgment of a physician for any given health issue. All content, including text, graphics, images and information, contained on or available through this web site is for general information purposes only. In addition, links on this site are provided only as an informational resource.

Please know that I am not a doctor and this site is simply full of suggestions that have been created from personal experience, research and information that has worked for me and/or things I have learned with experience over time. I will never promote any fad diets because Ido not believe in them. Your health is the most important thing that you have. Always check with your doctor or healthcare provider before trying any new exercise program and/or any new diet.

Overtime and along with other factors such as stress management, PT and a willingness to improve, my food list helped me start to regain my health. I am not a doctor. I do have Myasthenia Gravis. I have researched for 10+ years on how to get the body healthy. This site shared what I have done for myself with both success and failure. What you choose to adapt into your own lifestyle is up to you however please consult with your doctor prior to making any changes to your healthcare plan. 

One Reply to “Disclaimer”

  1. The FDA does not and has not reviewed or approved this response. Different people with different types of MG and different meds have different problems with different foods for a variety of reasons. Here are a few “tales from the troops”:

    Gluten sensitivity: Most MG meds tend to cause you to shed potassium to one degree or another. Many people with MG have trouble with diarrhea when they eat wheat products, likely as a result. Sometimes this is more like irritable bowel syndrome, rebounding back and forth. Many find help by cutting down on wheat or avoiding gluten altogether.

    Those of us with MG may also be extra sensitive to even trace amounts of the herbicide glyphosate (Roundup, etc) which is now known to cause disruptions to the natural flora in your gut. Since this may also be found in corn and corn meal, you may find you have a similar problem with things you would normally eat when you are avoiding gluten (there is a similar allergic reaction).

    Prednisone and even Mycophenolate (Cell Cept) disrupt your gut flora to some degree like Roundup, and depending on your dose, perhaps even more. The jury is still out on what this does to you. You may find that you have trouble with different foods than others even with your kind of MG and a similar Rx. Your digestion is definitely compromised to some degree. Some find a probiotic helps, especially if you are avoiding dairy.

    It appears that all of us with MG do not have enough of an enzyme called Carbonic Anhydrase III. This condition is known to nephrologists to be associated with problems with the liver, pancreas and kidneys. Your doctor checks blood tests on these vital organs regularly. Not proven, but it is probably this CAIII insufficiency which causes some side effects associated with MG meds and not the meds themselves, since these problems are known to develop over time in MG patients who do not take those meds. Problems with milk products are sometimes associated with intermittent problems with liver function.

    Problems with milk products seem somewhat common among us and you should talk to your doctor if you notice any change. That goes especially for people who develop problems with cheese products who have never had those problems before. Those are two different types of problems, not one. Don’t be afraid of dairy, but talk to your doctor about changes you notice. On the bright side, many people with MG seem to enjoy and even crave foods associated with a “liver cleanse” like Brussels sprouts, for example.

    For the most part, food sensitivities are more a nuisance than a danger in MG. You and your doctor are the only ones who can decide where the balance is for you, and that might change over time. Don’t be afraid to talk about it.

    Beware, however. If you ever have a short paralysis lasting 10 to 20 minutes, but that goes away. It is not “just your Myasthenia acting up.” Usually it means you are over medicated and is actually “drug induced hypokalemic periodic paralysis.” This is especially a danger if you are older, like me. MG patients who are over medicated also tend to have a lot of food sensitivities.

    When you are first diagnosed, you tend to go through some phases of grief like most people do who have a major illness. That does affect your MG and just about every normal body function. Today, MG can be managed, it’s not a death sentence, but we are all different. Your mood seems to have a lot to do with it.

    If you are having a problem, keep a food diary. In MG, however a major allergic reaction to food may affect you for about two weeks after, especially when it is caused by changes in gut bacteria. Be patient. You’ll find what’s right for you if you keep a positive attitude, healthy eating and sleeping habits, and ask if you think you have a problem.

    Best wishes for you going forward.

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